Medicine and me: living with Marfan syndrome
The Medicine and Me series of meetings aim to update us all on important conditions and gives a direct voice to patients and their carers to air their concerns on the impact of diagnosis, investigation and management.
The audience at this meeting comprised of those with living with Marfan syndrome, their families, carers and advocates, representing about 70% of those present; and clinicians and researchers, representing not more than 30%.
This event took place on Friday 29 September 2017 at the Royal Society of Medicine in London. This meeting was organised jointly with the Marfan Association UK and the Marfan Trust.
Dr Anne Child, Medical Director, Marfan Trust.Date: 29th September 2017
Lucy Knox, Marfan Trust.Date: 29th September 2017
Dr Michael Carr, Chair of Trustees, The Marfan Trust.Date: 29th September 2017
Alison Lashwood, Consultant Genetic Counsellor, Guy's and St Thomas' NHS Foundation Trust.Date: 29th September 2017
Ms Valerie Greatorex, Patient.Date: 29th September 2017
Dr Alex Pitcher, Clinical Lecturer, Cardiovascular Medicine, University of Oxford.Date: 29th September 2017
Professor John Pepper OBE, Director of Clinical Research, Royal Brompton and Harefield NHS Foundation Trust.Date: 29th September 2017
Kirsty PetersDate: 29th September 2017
Dr Anne Child, Medical Director of Marfan Trust, on behalf of Dr Aman Chandra, Consultant Ophthalmologist and Vitreoretinal Surgeon, Southend University Hospital NHS Foundation Trust.Date: 29th September 2017