Living with Klippel-Trenaunay syndrome: A parents perspective Free

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Ms Sarah Rogers describes her personal journey as a parent and carer of her six-year-old son suffering from Klippel-Tranuanay syndrome. Ms Sarah discusses the medical progress of diagnosing and treating her son, the black hole of doubt she fell into, and offers tips to help others get back on track.

This lecture was filmed at the RSM in London for the event 'Medicine and me: living with segmental overgrowth conditions' on the 11th of July 2017.

Length: 00:11:47

00:00:01 - Introduction
00:00:30 - The Patient
00:06:57 - My Black Hole
00:07:41 - Getting Back on Track
00:00:01
00:00:30
00:06:57
00:07:41
00:11:32
24:43

Sui Phin Kon, Consultant Nephrologist, King's College Hospital, London. 

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21:54

Sui Phin Kon, Consultant Nephrologist, King's College Hospital, London. 

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27:16

Nick Fox, Director, Dementia Research Centre, University College London. 

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17:10

Jonathan Herring, Faculty of Law, Exeter College, Oxford. 

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15:49

Dr David Barker, Chief Executive, Crohn's and Colitis UK. 

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15:49

Catherine Stansfield, Specialist IBD Nurse, Salford Royal NHS Foundation Trust.

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12:54

Dr Mariyana Schoultz, Clinical Academic Fellow, University of Stirling.

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10:47

Kay Greveson, Specialist IBD Nurse, Royal Free Hospital, London.

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22:16

Dr Miles Parkes, Gastroenterologist, Addenbrooke's Hospital NHS Foundation Trust, Cambridge.

Dr Hannah Gordon, Clinical Research Fellow, Chelsea and Westminster Hospital, London.

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